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portada Becoming Advocate. On Autism, Parenthood, Care and Online Advocacy
Type
Physical Book
Publisher
Collection
Disability and Chronicity through the Ethnographic Lens
Year
2026
Language
English
Pages
222
Format
Hardcover
Dimensions
22.9x6 cm
ISBN13
9781807580551

Becoming Advocate. On Autism, Parenthood, Care and Online Advocacy

Maria Concetta Lo Bosco (Author) · Berghahn Books · Hardcover

Becoming Advocate. On Autism, Parenthood, Care and Online Advocacy - Maria Concetta Lo Bosco

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Synopsis "Becoming Advocate. On Autism, Parenthood, Care and Online Advocacy"


Tracing the emergence of autism in Portugal, from its early recognition in child psychiatry to the rise of parent-led advocacy and digital activism, this book examines how families confront inadequate services, challenge outdated paradigms and advocate for educational and social reforms. Drawing on ethnography and critical analysis, it defines advocacy as a transformative practice that reshapes parents’ identities and links care with politics, showing how digital infrastructures become a force for collectivising in the absence of state support, revealing the intertwined socio-institutional and affective dimensions of care and civic engagement in Portugal. It explores how autistic subjectivities challenge normative notions of personhood and citizenship.





Features the first study of the parent-led autism advocacy movement in Portugal, contributing to contextualizing its emergence and understanding the changing discourses of disability politics in the country.

Appropriate for readers interested in medical anthropology, social movements, and disability studies.

Based on a rich empirically grounded investigation based on an ethnographic approach using both face-to-face and digital methods.



Tracing the emergence of autism in Portugal, from its early recognition in child psychiatry to the rise of parent-led advocacy and digital activism, this book examines how families confront inadequate services, challenge outdated paradigms and advocate for educational and social reforms.

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The book is written in English.
The binding of this edition is Hardcover.

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